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Whenever I read about a possible future diagnostic tool for #MECFS my brain immediately gives me some kind of imposter syndrome.
I immediately think "yeah, aaaand that's gonna come back normal for me too, and then im back to square one..." 
When you've heard to often that everything's fine, all tests are normal and you're just lazy and/or depressed.......
@jahleesu I have #YOPD, and I often feel this way. I’ve literally had #DBS brain surgery because my condition had gotten to the point where my freezing had become a major issue, generally not moving for long periods of time, and I couldn't enjoy my time with my family.
I still felt like I was being lazy. I still thought, maybe I don’t even have Parkinson’s. My wife says, “fakers" wouldn’t likely ever feel that way. With a sadistic work culture, it’s hard to accept we aren’t malingering.
I don't really think im faking (anymore), I'm just so tired of hearing that again and again fron other people because "I don't look sick" and "the tests are all good" and "you just need to lose weight".
If there was a test that could SHOW them what they don't believe me, that would be awesome.
But what if that test also said everything's fine?
@jahleesu Maybe I am ignorant of the situation, but are results conclusive?
If so, then perhaps your diagnosis changes, but it doesn’t change the fact that there is something very wrong.
A friend of mine spent years without a diagnosis of #MLS. Now, she’s unable to walk, and she is unlikely to live for 5 years.
Sorry for my ignorance.
Im sorry, English isn't my first language, I don't really know what "are results conclusive" means here
I think my problem is, that I finally found something (#MECFS) that explains EVERYTHING I have after a lot of half diagnoses and not quite fitting stuff.
And if suddenly it looks like I don't have that either, I think that would make me very depressed, because then i have to start from the beginning again and search the world to explain why my fucking body is like it is 